President

It's so difficult to raise money for non-profits. Crowd funding you find people raising 10,000 dollars for something that is innocuous. I don't get it. The non-profit I volunteer for helps kids that receive permanent arm paralysis during birth. Anyone know what a stinger is? Well this is a permanent stinger. Limiting mobility, range of motion, pain, and the ability to be bilateral. 12,000 babies a year are injured. One baby an hour every day. Erb's Palsy. Klumpkes palsy. Complete paralysis if all five nerves are ripped from the spine due to improper maneuvers by the ob or attending. Physical and occupational therapy. Surgeries. Rare enough that most kids never meet another kid like them ever. Camp UBPN gives them that opportunity. $5 would be enough to say that this cause is important. This injury also happens from sports, automobile and motorcycle accidents, and a myriad of other traumatic accidents. But a newborn shouldn't have to deal with it. And yet they do. Let them know they are not alone. Send them to Camp. Donate anything. My daughter Kailyn has the injury. Has endured two surgeries, the second because she was experiencing 10/10 pain syndrome. So that's why this is important to me.. Camp lets people learn from each other.. Without it, they are alone and on their own without understanding or  support. Click the link Donate to Camp UBPN 2017

Rich Looby

We're just planning for our next BOD meeting in for 2016.   If you have any suggestions for the BOD to review please forward them to This email address is being protected from spambots. You need JavaScript enabled to view it.

Our  Website

The website still gets lot's of hits, and we hope the information contained is still of value to the community.  With the growth of social media, our forums are not utilized but contain historical data that we leave them open

Social Media  Websites

Make sure you go follow all of the UBPN social media pages to stay updated!

Twitter: @UBPN

Instagram: @OfficialUBPN

AND add us on snapchat: officialUBPN

 

Our  Store and Amazon

We continue to sell awareness items through our UBPN store.  Consider purchasing a magnet or bracelet to help spread awareness!  We just received new jewelry awareness pins so order your for next awareness week.

UBPN Store

If you do shop through Amazon, please consider using this link:

UBPN Amazon Link

It will not cost you anything extra, and a small portion of sale goes to benefit UBPN

If you have benefited from the resources offered by UBPN, through the magazine, camp, website or message boards, please consider supporting UBPN through a donation of your time or resources. Without the community’s support, UBPN would be just another brachial plexus website, not the home it has been for so many.


Thank you for your support.

Awareness Week 2016-It's not your fault

"Brachial Plexus Awareness week 2016 ss the first full third week of October 16-22th 2016. We're looking for videos and pictures that show empowerment of mothers and families to show that they have found ways to move on from blaming themselves-because it wasn't your fault.  click here for more info Awareness week 2016

Volunteers

We have asked for volunteers, and we are happy when people come forward.  We are always looking for help, whether it be website review-looking for deadlinks, Reviewing drafts of Outreach, Joomla experts, Fundraisers (especially!), or people who have connections who can help get the word out.

Outreach e-blast

Traci Foster is always looking for good stories, so if you have something to share like an inspirational story send it to This email address is being protected from spambots. You need JavaScript enabled to view it. or This email address is being protected from spambots. You need JavaScript enabled to view it.

Rich Looby

The passionate video production of Newborn Birth Injuries: The Untold Story has aired nationwide on PBS stations to several million viewers! . If you missed it you can view the piece that is airing on PBS by clicking here.

UBPN was also fortunate to be able to produce a 25-minute companion documentary, which can be viewed below. You can also purchase the full 25-minute documentary  on DVD (which also has the 5 minute PBS version) by clicking here.  Purchasing the video will continue to help us with our prevention efforst!!

 

PSA

UBPN is pleased and excited to announce the availability of broadcast-ready public service announcements for download in mp3 format.

Thanks to Julie Lloyd, a member of our UBPN community, UBPN was able to have our long-available print PSAs put into recorded format.

And now, thanks to the time and talents of Piper Phynnie, of K-Bear 101 in Idaho Falls, ID, they are available for radio stations and our community.

We hope you will take the time to contact your local radio stations and point them to our web site. You can also download the MP3 recordings yourself and forward them to your local programming director.

Click here to listen and download all the PSAs!

You are here: Home Blogs President

Contact us

We look forward to your comments and suggestions!

  • Address: 32 William Road Reading, MA 01867
  • Phone: 781-315-6161
  • Website: www.ubpn.org
  • Email: info@ubpn.org