Private Message Boards?

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User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Private Message Boards?

Post by marieke » Sun Nov 22, 2009 1:35 pm

Where did they go?
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com

Chrissie
Posts: 38
Joined: Sat May 16, 2009 11:57 am

Re: Private Message Boards?

Post by Chrissie » Mon Nov 23, 2009 10:51 am

Hi, I just logged on to this new configuration and am also trying to find the private message boards. Where did they go? :o

User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Private Message Boards?

Post by marieke » Mon Nov 23, 2009 12:19 pm

The mods know about it now.. I guess they will add them back in soon :)
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com

User avatar
KimW
Posts: 58
Joined: Fri May 09, 2008 9:24 pm
Injury Description, Date, extent, surgical intervention etc: My daughter has a right obstetrical injury. She is 16.
Two surgeries include nerve graft and muscle release.
A great kid that plays soccer, rides horses, plays the piano
and clarinet.

Re: Private Message Boards?

Post by KimW » Mon Nov 23, 2009 1:39 pm

The private boards will return. We need to reprogram these boards. We are continuing to work on the boards but wanted to get the basic forums up and going as soon as possible. Thanks for your patience.
Kim West
"Children are likely to live up to what you believe of them." Lady Bird Johnson

Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Private Message Boards?

Post by Kath » Mon Nov 23, 2009 3:09 pm

Thanks Kim, you have really taken on a huge task and your hard work is appreciated.
This new website is great and gives UBPN a much more professional public look.

Kath
Kath robpi/adult

Kathleen Mallozzi

Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Private Message Boards?

Post by Carolyn J » Tue Jul 31, 2012 3:21 pm

Bumping Up for new people. :D 8-)
Carolyn J
LOBPI/74

jmar
Posts: 528
Joined: Tue Aug 10, 2010 3:43 pm
Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.

Re: Private Message Boards?

Post by jmar » Tue Jul 31, 2012 4:05 pm

in 2 years there have been 3 posts on the TBPI private board. i guess it is like the camp, if you were not injured at birth, you dont count.

User avatar
Christopher
Posts: 845
Joined: Wed Jun 18, 2003 10:09 pm
Injury Description, Date, extent, surgical intervention etc: Date of Injury: 12/15/02

Level of Injury:
-dominant side C5, C6, & C7 avulsed. C8 & T1 stretched & crushed

BPI Related Surgeries:
-2 Intercostal nerves grafted to Biceps muscle,
-Free-Gracilis muscle transfer to Biceps Region innervated with 2 Intercostal nerves grafts.
-2 Sural nerves harvested from both Calves for nerve grafting.
-Partial Ulnar nerve grafted to Long Triceps.
-Uninjured C7 Hemi-Contralateral cross-over to Deltoid muscle.
-Wrist flexor tendon transfer to middle, ring, & pinky finger extensors.

Surgical medical facility:
Brachial Plexus Clinic at The Mayo Clinic, Rochester MN
(all surgeries successful)

"Do what you can, with what you have, where you are."
~Theodore Roosevelt
Location: Los Angeles, California USA

Re: Private Message Boards?

Post by Christopher » Tue Jul 31, 2012 5:30 pm

Does someone need some attention?

well, here's some:

“If we could change ourselves, the tendencies in the world would also change. As a man changes his own nature, so does the attitude of the world change towards him. … We need not wait to see what others do.”
~Mahatma Gandhi

cliff notes:
"Be the Change you want to see in the World"

jmar
Posts: 528
Joined: Tue Aug 10, 2010 3:43 pm
Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.

Re: Private Message Boards?

Post by jmar » Tue Jul 31, 2012 8:56 pm

no i dont need any attention or remarks. people were rude to me at camp.

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