Live Chat

Send suggestions to the UBPN or find answers to your questions about the boards.
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Live Chat

Post by Carolyn J » Sun Oct 31, 2010 9:35 am

I like that idea, jmar. I can commit for 2 hrs during the day.Pacific Standard time, mornings are best for me. I would make it my "Computer time" [when I sit doing stuff, as opposed to walking by checking the screen]. :?
Carolyn J
LOBPI/72
Carolyn J
Adult LOBPI

jmar
Posts: 528
Joined: Tue Aug 10, 2010 3:43 pm
Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.

Re: Live Chat

Post by jmar » Sun Oct 31, 2010 3:32 pm

i am available any evening and a few daytime hours. any one else be interested?

User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Live Chat

Post by marieke » Mon Nov 01, 2010 5:32 pm

http://www.facebook.com/home.php?#!/eve ... 7460465112

This one is always the same time(s) and same day every week.

We post reminders on Facebook as many people are on there too.

Wednesdays
5-7pm PST
6-8pm MST
7-9pm CST
8-10pm EST
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com

jmar
Posts: 528
Joined: Tue Aug 10, 2010 3:43 pm
Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.

Re: Live Chat

Post by jmar » Mon Nov 01, 2010 7:36 pm

i realize we have one on wednesdays, but how about any other times? not everyone is available at that time i was thinking more about other times having someone there for people to just be available to talk to.

User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Live Chat

Post by marieke » Tue Nov 02, 2010 1:45 pm

What I meant was, you can also make another time and post it on FB too... this is just one option already done. I know some people may not be on FB so may not know about this one :)
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com

Post Reply

Who is online

Users browsing this forum: No registered users and 1 guest