chronicly dislocated shoulder

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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_ashleyporter
Posts: 1
Joined: Fri Jun 24, 2016 12:57 am
Injury Description, Date, extent, surgical intervention etc: OBPI

chronicly dislocated shoulder

Post by _ashleyporter » Sun Nov 06, 2016 9:10 pm

Hi Im Ashley. I have a ROBPI with a permanent posterior dislocation.

I'm not sure if this forum is still active but my mom, Lenni, used to post in here when I was a baby.

I'm now 20 and finally accepting and learning about my disability. Even if nobody can help me with my question please feel free to reach out because I'd love to meet or talk with people like me.

I had 3 surgeries when I was younger. I cannot straighten my arm, put it behind my back, turn my palm upwards, or raise it above my head (without help- but I'm not sure if that's great for my dislocation).

I've done some searching and haven't been able to find anyone else with a permanent dislocation. But for me this is what causes me the most pain. I have a brace and a sling that I use occasionally but both only do a subpar job. Is there any specific slings or braces anyone recommends? Tape?

Weldernut
Posts: 6
Joined: Sat Dec 06, 2014 10:09 pm
Injury Description, Date, extent, surgical intervention etc: Motorcycle accident 10/20/14 awaiting surgery total arm paralyzed nerves avulsed

Re: chronicly dislocated shoulder

Post by Weldernut » Wed Nov 09, 2016 8:18 pm

hey welcome to the site, doesnt seem very active here lately. I asked a question but got similar results. Id reccomend getting Dan's sling I wear one daily, I have a TBPI injury and shoulder dislocation pain also. Hang in there 8-)

Theres a link on here to Dans sling.

Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: chronicly dislocated shoulder

Post by Kath » Tue Dec 06, 2016 8:16 pm

Hi Ashley,
I have a ROBPI and right now I feel as if my shoulder and scapular are out of place. I was recently hurt during my Mamogram the technician kept pushing my shoulder down and pulling my arm to stretch it out. After years of PT I had almost no pain and now it's chronic and severe.
I'm trying to decide on going to the chiropractor or an orthopedist.

Welcome to UBPN. Sorry I did not respond sooner, November is a crazy busy family month.
We have a medical directory on this site, perhaps there is a BPI specialist near your home. If you go to any doctor you should ask how many other BPI patients he has treated. Sometimes physicians are guessing when it comes to treating us and not giving good advice.

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