United Brachial Plexus Network

Hi.

We will be there April 24th at 9 am as well. Please feel free to email me Shannon.Furlong@gmail.com.

Hi..Where in MD are you? I'm in Mclean, VA which is 10 mins from bethesda and 45 mins from Baltimore. Feel free to email me Shannon.Furlong@gmail.com

<t>Thank you all for your great advice. We have decided to see Dr. Kozin and have our first appt this Fri, I am very much looking forward to this. The first few weeks of her life were so hard and up until I found this site I felt so alone. I do not see her injury anymore instead I only see my beauti...

I was able to buy them online. Here is a link if anyone else is interested. The total for all 3 books came out to 14.00 USD.
http://www.erbspalsygroup.co.uk/merchandise.asp

Hi. I saw a few children's books on a UK Erb's palsy website named Herbie and his special arm and Herbie has an operation and was wondering if anyone knows of any similar children's books for sale in the U.S? Thanks in advance:-)

[Edited by: admin on Feb 16, 2009 1:02 AM]

<t>Thank you. I also sent an application to Shriners in Phili about a week and a half ago. I also have an appt with Dr. Keating here at Children's Hospital in DC at the end of the month. I just keep hearing that an effective surgery should be performed at approx 3 months, she has 3 avulsions... I am...

Hi--My daughter is 7 weeks old with RBPI, I sent a video evaluation to Dr. Nath about 2 weeks ago. Does anyone know how long it takes to hear back from him? Does he suggest surgery just from that or do you need to see him for an evaluation in person as well? Thank you in advance!

Thank you all for your encouragement, advice and kind words. I am so very happy I have found this website for support and information.

Hi. My daughter is currently 5 weeks old and would meet other moms whose children have a BPI or learn about events I can attend in my area.

<t>Hi. I gave birth to a beautiful baby girl last month 12/08 with a BPI with nerve root avulsion. I have been just trying to educate myself on her injury and am so glad I found this forum! Does any one have any advice that you wish you would of known, what can I expect for my daughters future, surg...