United Brachial Plexus Network

Does anyone have any advise for obtaining SSI for my grandson? I have been told that there has to be damage to 2 extremities in order to qualify. Matthew has a LOBPI which means that only his left arm was affected. He has had 2 surgeries and is now able to move his left arm but not his hand. Any adv...

Hi, I have a 4 yr old son with an OBPI injury to his left arm and has had a nerve transfer and a tendon transfer to his wrist. My question is other than pain to the elbow have any of you had pain to the hand? He complains every once in a while but the pain is excruciating where i have taken him to t...

My grandson, Matthew, will be 5 next month. He's starting to ride his bike but we need a handlebar extender for him to be able to reach with his injured LOBPI arm. If anyone knows where we can buy one please let me know. Any help will be appreciated. Thank you and God bless.

My 4 year old grandson has a LOBP injury. He goes to therapy twice a week. I've never heard of a chiropractor helping someone with this type of injury. Could you tell me what a chiroprator does that a therapist doesn't? How are they different? Thank you.

We are looking for parents of OBPI children in the San Antonio, Texas area to form a support group to compare experiences and share stories of struggles and surgeries and accomplishments and hope. We can meet periodically , exchange phone numbers or email if you prefer. Please let me know if anyone ...

These are some books that I think may help parents of children with BPI, or any other special needs. We've found them very helpful and inspiring. I ordered them online from Powell's Books.com but you may be able to find them at the library. I hope you find them helpful. "One-Handed in a Two-Han...

Thank you all for your replies, this gives me great hope for Matthew. God bless.

I have a grandson with an OBP injury and he's almost 4 years old. He loves to be in his inflatable pool, that we fill up to above his waist, and he is not afraid of the water but we have to keep an eye on him because he sometimes loses his balance and isn't able to help himself up quickly because of...

My 3 year old grandson, Matthew,was born with a LOBPI. He suffered the worst kind of injury where the nerves are completely torn out of his spine. He had nerve transfer surgery at 7 months and with therapy was able to get movement on his arm after a few weeks. He had tendon transfer surgery about 4 ...

Congratulations, FullHouse Mom!! I'm happy to hear someone won a BPI lawwsuit. Would you mind telling me which lawyer you hired to fight your case? We've been looking, but so far haven't found one who will take our case. They all say these types of cases are very hard to prove. Maybe your lawyer can...