United Brachial Plexus Network

I make BPI awareness necklaces and was just wondering if anyone would be interested in one! I can send pictures, I just dont have any on my computer so I cant at this time. My email address is katiexgraf@live.com if anyone is interested

I agree with kate. From what i've heard and read from multiple sources, triangle tilt is not needed/worth the "results"

I just thought that I should notify the parents on here about Shriners Hospital in Philadelphia, Pennsylvania. We are your typical middle class family. Not poor, but certainly not rich. When we found out our daughter had a bpi injury, we, like every parent, only wanted our baby to see the very best ...

She did amazing!!! She was very upset for about two hours after the surgery, but then she adapted perfectly! She wasnt in any noticeable pain at all. Maybe her age (10 months at time of surgery) had to do with the way she adapted, but she simply amazed me! She moves around very well! It took her a f...

Thank you thank you!! My daughter just had it may eighth!

Our daughter was born with a ROBPI injury. She can lift her arm to ninety degrees and had no external rotation. We have been through many many things this past ten and a half months. We had been seeing a specialist in Milwaukee Childrens Hospital for our daughters bpi injury, and to say the least we...

Thank you all! So much has happened and so much has changed every day this week. We are trusting her now with Dr Kozin and we will do what he says. Its a very long story, but this man is unbelievable and Im so lucky to have found him and his office!

Try Dr Kozin. He's located in PA. Ive heard nothing but wonderful things about him. Hes one of the best in the world

My daughter is 8 months (almost 9 ) and has a robpi. She has almost full elbow,hand and finger movements and can reach to ninety degrees so far. I am thinking that her dr in milwaukee may recommend nerve surgery for her. I had a horrible negative feeling when it was mentioned so i looked further. I ...

Has anyone's child ever received the mod quad surgery?? Did your child gain or lose any motions? Any stories would be great