United Brachial Plexus Network

<t>Hi to all of you that are in or near the Atlanta, GA area. We had a great get together at the Smart's house in July. We started talking about dates for the next gathering and some dates came up in October. I just wanted to post this message so that you all can start looking at your calendars and ...

<t>Thanks everyone for your "woohoos." It means a lot to hear from people that know what we are going through. I know that when I have read some other posts from parents about their kids making progress and my child hadn't reached that point,it sometimes discouraged me. But as always I have learned ...

<t>I just wanted to edit the subject so that everyone knew what I was posting about! Carol<br/> <br/> <br/> > Well, after 2 long years my husband and I finally saw<br/> > our daughter Lucy's thumb and fingers move on her<br/> > injured hand for the first time in her life. And she<br/> > did it when ...

<t>Well, after 2 long years my husband and I finally saw our daughter Lucy's thumb and fingers move on her injured hand for the first time in her life. And she did it when we asked her to do it! I say it has been the longest and shortest 2 years of our lives because I cannot believe that she is alre...

<t>hi Jessica,<br/> My daughter Lucy had primary nerve grafting done when she was 3 months old. She is now 2 and her 2 year surgery anniversary will be the beginning of October. She had a global injury meaning that all 5 nerves were involved and they ended up only having 2 viable nerve roots to graf...

<t>It looks like you are about 4 hours from Atlanta, GA. There is a brachial plexus clinic at Children's Healthcare of Atlanta, Scottish Rite. Driving wise it is probably the closest but if you don't mind flying or traveling further you have plenty of other options. We take our daughter Lucy to CHOA...

<t>Hi Mica,<br/> We have done this exact same thing. Lucy had a very severe injury to her left arm. Her Dr. (Dr.Schwentker)said that she only had 2 viable nerve roots to graft to when she was doing the reconstruction (C5 - T1 were involved). We did her surgery at 3 months of age. She is now 2. We di...

Hi Dylecia,
Check out the BPI Events board. Some of us in the Atlanta area are getting together on the 28th. If you are around you shouls come! Carol, mom to Lucy, 2, LOBPI

P.S. I also agree with the other stuff people posted about teaching the life skills and rehab differences. The explanation for OT that I gave is geared toward the infant as I have experienced it.

<t>The way our therapists explained it to us is that generally speaking PT deals with gross motor skills and OT deals with fine motor skills. PT deals with whole body and getting proper form. Some of the things our PT did with Lucy more recently included stepping up and down from a low step, standin...