United Brachial Plexus Network

<t>Hi Laura, my son Tyler is 9 and figured out how to close snap jeans when he was about 7. He hates button jeans, so he only has snap for now, but from all these stories it sounds like buttons are not impossible! At age 6, he may just not be coordinated enough to get it figured out. You're right th...

<t>Tisha, I think Janet's right. Most 2 1/2 year olds just aren't very coordinated, and doubly so when they have a severe BPI. My son had no use of his hand at 2 1/2 either and struggled quite a bit to get those pants up. I used bigger underwear and elastic waist pants that are loose and he just wor...

<t>Jennifer, my son only has pain in his arm when he has a fever. He's 9 now and describes it as "my arm is shocking me", so I guess he feels an electric shock down his arm. It happends every 15 seconds or so while he has a fever. Sometimes he winces and grabs his arm with each shock...I've heard ma...

What's the website please??? Thanks!
Jaime

<t>Gosh, several years ago, when my son had his second surgery, there was a kid who had this done. Otherwise I've never known anyone. It was at TCH, and I'm sure it was Dr. Nath. This kid seemed to do just fine. He was up and about that evening and didn't even seem fazed. I bet he was about 7 years ...

<r>Hi, check out <URL url="http://www.tascnetwork.net">www.tascnetwork.net</URL>. It is Karen Pape's website, and it goes into detail about the 20/4/80 program. It's got a ton of great information on it. I "subscribed" to the website and the articles are well worth the small fee. (I think $35 or so)...

WHAT?????????? You've GOT to be kidding!
That's horrible! I was so looking forward to going! I couldn't sign up until after Christmas (you know - $$$). So much for that...........RockyMtnGal, where did you hear this?
Jaime

<t>Katie, my son is 9 and has had four surgeries at Texas Children's Hospital. The first three with Dr. Nath and the last with Dr. Shenaq. I have utmost confidence in both doctor's. I don't think you can go wrong with either. <br/> Glad you found the website and all the information out there. It's h...

<t>My son is older so it's not an issue, but for comfort, we place the electrodes, then cover the arm to the armpit with a "sock". I put the whole unit through his sleeve, so the wires are coming out by the armpit and going down his side. Then I place the unit it a fanny pack and it goes around his ...

EEK! This doesn't sound good to me. I would be VERY hesitant to allow this....nah - I'm just pretty sure I couldn't allow it. Not unless I was presented with a very good PROVEN reason to do it. Why mess with an already injured plexus? Scary!
Jaime