United Brachial Plexus Network

<t>I looked at the website and I find these to look very interesting. My son who will be 8 in nine days has never had surgery...he has scapular winging and cannot raise his arm straight up without arching his back...he is playing baseball this summer and cannot put his arm in the air to catch the ba...

<t>I don't have an opportunity to come often and mostly just lurk, but after reading your post and skimming the replies I wanted to let you know that I have an adopted 8 1/2 year old daughter with ADD and SID. (My soon to be 8 year old adopted boy has LOBPI). SID actually seems like a form of autism...

<t>My 8 year old non-bpi child has this as well as ADD and a non-verbal learning disorder...we have had her in school since she was 3, prior to that she received services with Early Intervention Program...We have had her extensively tested with the school district, as well as a Neuropsychiatrist who...

<t>Thanks to everyone for their input...I certainly am less angry now than I was on Thursday...I am going to check with the Park and Recreation department on this...It will be interesting to see what they have to say...I do not want my child ostracized because I spoke up, but yet, I am so tired of m...

<t>Does anyone have a child with OBPI that plays soccer? My son is 7 and has been participating for 3 years in soccer with our city's Park and Rec department and up until today it has been going well...today he had his first fall practice with a new coach...every spring and fall he has had a differe...

<t>Hi,<br/> I have a seven year old boy with LOBPI. We live half-way between Madison and Milwaukee. When our son was first born he was seen at Children's Hospital for PT/OT and saw Drs. Jacobson and Matloub. Due to insurance changes we were forced to go to UW-Madison to Drs. Iskandar and Bentz. To d...

<t>My son is also going into 2nd grade and never has had an IEP...He was in the Birth to 3 Program and received OT/PT and then when he turned 3 he had an evaluation with the local school system...It was noted that he did not qualify for services, primarily due to not having speech issues...they did ...

<t>Our doctors also wanted us to have our son bear weight. They discouraged using a walker because he depended too much on his legs to be mobile. When he was ready to crawl, he used the combat crawl, doctors then wanted us to get him up on his arm. We just put a beach towel around his middle, suspen...

<t>I have been very lucky in that outside of me making appointments for various medical appointments, my husband has always been very involved. He has gone to every single appointment and asks questions as necessary and he has done Joseph's ROM consistently. When Joseph was a baby, I initially did h...

<t>Thank you to all of you who offered your prayers and kind words for Michelle and her family. Michelle died peacefully with her family by her side at 10:00pm on Monday. It took them 6 hours to wean her off the ventilator because her heart was so strong, they wanted it to be comfortable for her. Sh...