United Brachial Plexus Network, Inc.

Does anyone know of a way i can get ssi for my son. We live in florida and they say that he is not disabled because it does not effect.more then one extremity. To me it is a disability, he did not sit up on his own until he was 7months old. He is 11months old and just started to.stand. He can not play with his toys properly, he uses his feet and smacks them around with his left arm. While he lifts his right arm (the injured arm) with his shoulder, and not very high. How can i get ssi for my son. How can they say its not a disability? He had surgery recently and may need another one. He still falls flat on his face and can not crawl. He does not pit pressure on his right arm at all. i have applied calling it brachial plexus and erbs palsy, nothing works for these people. I need the money to pay for medical expenses.

I strongly advise Appealing the decision, you have the right. Appeal more than once, Appeal "Until". There also is a Thread on getting SSD that may help with the "terms" and specific information to Erb's/OBPI. I will try to bring it up for you.
The Bumped up THREAD on SSD/SSI is in theGeneral Forum/message Board.
Carolyn J
LOBPI/75

I thought I should write here,
There got to be a way to share here
Its ERBS at birth , and a Mom worrying about SSD???
ERBS in arm not enough, True, many one arm people do learn to work, some how
Do you have a lawyer for the disability for your child ??? I was born in the 50s with birth erbs and yes , Having limitation in one arm is not enough but what seems to be missing , that does count is other medical condition and mental condition as a baby with erbs. Post traumatic experience can happen to a baby a child or and a latter in life injury to. It comes from trying and things we never can do one handed, Depression is the result of the harmful emotional experience , no matter when these injuries happen ,
IT is so important in filling for SSD, to list all medical issues and emotional ones to, I was the baby with erbs, my only good arm got rip up driving a semi, others get over use issues overtime. Everything counts in a decision, unfortunately the more medical issue you have other than , one arm will help more in a SSD case
Real and true, Can anyone dispute a baby a child adults dealing with a pain issue , it a fact by trying to overcome the limitation. I live this life to as many post to What is also true how we all adapt our way, If it strange how your baby does things than there just trying to adapt, there way. it is better to encourage trying than trying to protect
Just thinking,
Tom

Tom

See a SSA lawyer, but then you might have gone to see one??
But if your worried about medical expenses for evaluation , see the lawyer
Your not alone, you like many parents here show so much Tenacity to try The child with limitation does learn tenacity by , the gift come from the parent/or parents
Every post ever try that we post draw these hope and trys to a degree of more pain more failure and depression is the
Ever-one that finds a way to try does come with life long issue,
The wide verity of post and trys and doing always make me smile
When these injuries lead you to need help from UBPN and SSD , Ubpn got it in to SSD, it counts.
Just thinking
Tom