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President's Blog

 

Rich Looby

We're just planning for our next BOD meeting in for 2014.   If you have any suggestions for the BOD to review please forward them to This email address is being protected from spambots. You need JavaScript enabled to view it.

Our  Website

We updated the website which has really diminished the fake registrations (YAY!), and brought in new technology like instant messaging.  It also has a great (underutilized) chat system available for group chat.  Take advantage of it!

Our  Store and Amazon

We continue to sell awarenss items through our UBPN store.  Consider purchasing a magnet or bracelet to help spread awareness!  We just received new jewelry awareness pins so order your for next awareness week.

UBPN Store

If you do shop through Amazon, please consider using this link:

UBPN Amazon Link

It will not cost you anything extra, and a small portion of sale goes to benefit UBPN

If you have benefited from the resources offered by UBPN, through the magazine, camp, website or message boards, please consider supporting UBPN through a donation of your time or resources. Without the community’s support, UBPN would be just another brachial plexus website, not the home it has been for so many.


Thank you for your support.

Awarenes Week 2013-How do you do that?

"Brachial Plexus Awareness week 2013 was the first full third week of October20-26th 2013. UBPN produced and collected videos from the Community who  demonstrated how they do things. It covered many topics like buttoning s, tying shoes, playing golf or even a musical instrument. The video series is called "How do you do that??"   and can be seen on our awareness forum or on our facebook pages. Thank you to all who contributed!

Volunteers

We have asked for volunteers, and we are happy when people come forward.  We are always looking for help, whether it be website review-looking for deadlinks, Reviewing drafts of Outreach, Joomla experts, Fundraisers (especially!), or people who have connections who can help get the word out.

Outreach

Jen is always looking for good stories, so if you have something to share like an inspirational story send it to This email address is being protected from spambots. You need JavaScript enabled to view it. or This email address is being protected from spambots. You need JavaScript enabled to view it.

Rich Looby

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