Story submitted by Erica on September 25, 1999 at 08:11:31:
Erica is 18, from Alberta , canada.
Family:
Hi everyone,
I just wanted to update you all on what's happening. Those at camp may have remembered my mentioning I was going to see an orthopedic surg. I did and am now being referred to Another on who has more experience with uppeer limb extremities. I also saw my plastic surg. and am waiting to have my upper arm cionstrictive band removed. if not for more movement, but just for looks. It's really ugly. It looks like someone put an elastic band on my arm and didn't take it off. If any of your kids are developing one, please, please get it removed. I am told it is a very minor surgery. He will do mine with just freezing.
Anyways so now i am waiting again. For how long I don't know. Life with these is a waiting game. I am soo sick of waiting. But what can I do. And addict if you are there reading this, If you ever, and i mean ever want to talk I am here. I don't know how much help I will be, but i will listen.
So I don't know if I'll have internet service when I move, but don't worry I will check in with you once in a while. I am out there.
Dianna can you e-mail me Everett or your snail mail address. Since were born in the same month I want to get him a little something. thanx
And to the dad I met at camp who had the litte boy who got rope burn and we chatted. I hope you know who you are. please e-mail me.
So I guess that's it. 2 more weeks until I move.
So PUSH(pray until something happens) and remember I care,
Erica;P
©Copyright 1997 Erbs Palsy Information & Resource Group.