United Brachial Plexus Network

<t>Thank you all for sharing with me, it is all great advice. <br/> I normally don't start 'freakin' out about her not keeping up with other kids. And then I counted out on my fingers it has been 9 months since her primary. We have been following up (every 3 months) at the Seattle Children's which d...

<t>Hey mom! Go ahead and cry it's natural. Thinking back, I wish I was offered something (drug) <br/> <br/> I have spent a lot of time crying and feeling depressed as well. I LOST IT in Texas when they returned my daughter to me. I don't know if drugs would have helped that or not. I do remember the...

<t>Hi everyone, it's been a while we have been busy. I have a question though. I can't seem to get the search function to work. So, anyway....<br/> <br/> My daughter Tara is just over a year old with LOBPI, she had the primary at 5 months in Texas. I see a lot of discussion about Bicep contractures ...

How do I change my email address in my profile.

My old address is brendarenee@earthlink.net
my new address is scamair@earthlink.net

Thanks for any help

<r>Hi everyone! <br/> <br/> Just thought I would pass on a great product to you all. My 11 month old daughter has OBPI, and it just so happens my grandma is paralyzed on the left as well, but her's is due to a stroke. I followed a link from this site to <URL url="http://www.dynamic-living.com">www.d...

<r>Hi everyone! <br/> <br/> Just thought I would pass on a great product to you all. My 11 month old daughter has OBPI, and it just so happens my grandma is paralyzed on the left as well, but her's is due to a stroke. I followed a link from this site to <URL url="http://www.dynamic-living.com">www.d...

<t>Thanks for all your suggestions. I especially like the indoor pool idea, but that one might be awhile. My current laundry room is built up and front loading and I wouldn't have it any other way. The bathroom and kitchen ideas were great as well.<br/> <br/> Our living room is currently overtaken w...

<t>This may sound kind of strange but I have a question for those who have grown up with the obpi. My 10 month old Tara also has obpi. My husband and are in the designing process of building a new house.<br/> <br/> With my daughter's interest in mind, I am wondering if there are things we can design...

<t>Hi Paula!<br/> <br/> My daughter Tara, 9mos, had the primary just a month before your son, I believe. <br/> <br/> We know she is progressing, but if I compared her to a lot of the others here, I would go crazy. She still has no feeling in her entire arm, still internally rotated, same positions a...

<t>After attending a BPI clinic in Seattle, my 9 month old daughter Tara, shows she needs the muscle transfer surgery. Her internal rotation is such that they think she is heading for dislocation.<br/> I inquired as to the use of Botox on the one muscle that is working...etc. 'It is not the policy o...